Undiagnosed Conditions
If you have a chronic condition but have been unable to get a diagnosis despite the efforts of multiple doctors, we understand the challenges you face. You may have a rare disorder that other doctors aren’t familiar with. Or you could have a condition that is difficult to diagnose. Our multi-disciplinary team at Cedars-Sinai is dedicated to providing you with a path toward diagnosing these rare conditions.
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How an evaluation for Undiagnosed Conditions works
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Complete record collection and submission
We’ll call you within one business day to schedule an intake assessment with your assigned nurse coordinator.
Your nurse coordinator is an advocate who will walk you through the process and provide personalized service. You’ll work along with your nurse coordinator to collect your previous medical records and prepare them for the Undiagnosed Conditions program’s consideration.Our team verifies your records
Once you submit your medical records, our team will review them to make sure they are complete. If anything is missing that would be important to consider in determining your eligibility for the program, we will contact you to let you know, and partner with you to collect necessary items.
Prequalification and records review
Once we have all your records, the information will be reviewed and presented to the program’s multi-disciplinary panel of medical professionals to determine whether Cedars-Sinai may be able to offer services to assist with understanding your condition. This is to ensure the Undiagnosed Conditions program is the right choice to move forward. If we determine that we may be able to offer services to assist with understanding your condition, we will move forward with the review process and you will ultimately receive a written report summarizing a path toward achieving a diagnosis.
Receive your written report
Your written Undiagnosed Conditions program report is a personalized resource based on the multi-disciplinary panel consideration of your case. This report will include our recommendations for you to consider in proceeding to a path to obtain a diagnosis. After you receive your report, you will have an opportunity to talk with the physician leader of the Undiagnosed Conditions program about what tests and services are available if you decide to seek healthcare services at Cedars-Sinai Medical Center.
Ask questions about your report
You will have the opportunity to meet virtually with the head of our Undiagnosed Conditions program team using your smartphone, laptop or other webcam-enabled device. This gives you an opportunity to ask our physician leader questions about the report and what tests and services are available so that you can decide whether to seek healthcare services at Cedars-Sinai Medical Center to diagnose your condition.
If you choose to pursue receiving services from Cedars-Sinai Medical Center or with Cedars-Sinai’s doctors, the Undiagnosed Conditions program team can coordinate any needed referrals.
Meet our world-class specialists
Cedars-Sinai’s Undiagnosed Conditions program works with a multi-disciplinary panel of specialists including cardiologists, geneticists, neurologists, endocrinologists, gastroenterologists and infectious-disease specialists to develop a path toward diagnosis of your condition so you can achieve optimal health and wellness.
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“Our mission is to pave the way for individuals whose conditions have defied diagnosis and clear treatment solutions. Leveraging Cedars-Sinai’s cutting-edge research, we conduct a thorough analysis of all available medical records and collaborate with our diverse team of specialized experts at the Center for Undiagnosed Conditions. Together, we strive to assist those in search of transformative answers that can enhance their quality of life.”
Lalima A. Hoq, MD | General Internal Medicine, Undiagnosed Conditions Program
Frequently asked questions
It’s natural to have questions regarding undiagnosed conditions. We’re here with answers to some of the questions participants often have about our Undiagnosed Conditions program.
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Virtual Second Opinions are not covered by insurance, but other options may be eligible
Our Virtual Second Opinion service is unique by providing a high level of personalized service and giving you an accelerated second opinion report from the comfort of your home. Call us if you are interested in learning more about an in-person consultation, which may be eligible for insurance coverage at 310-423-4654.